20 years with cystinuria · Lynne White
Cystinuria is hard.
You don't have to figure it out alone.
Honest stories from the worst years, what I've learned since, and the guides I wish I'd had when I was first diagnosed in my 20s.
Then →
Original posts from my old Cystinuria Blog (2008–2014), raw and unedited, with the date I first wrote them.
Now →
A “20 years later” note on each one: what changed, what didn't, and what I'd tell my younger self.
Now: new posts
View all →The Genetics of Cystinuria: Understanding Types A, B, and AB
Living with cystinuria means learning a vocabulary most people never need. Cystine. Twenty-four-hour urine collections. And, eventually, the question:…
Read → November 5, 2026When Plain Water Is Hard to Drink: Staying Hydrated With Cystinuria
“Drink more water” sounds simple until plain water is something you struggle to drink. For me, that struggle goes back to Marine Corps recruit trainin…
Read →From the archive
View all →Lucky and Hopeful
I am thoroughly stoked. So we're here in California trying to get all settled and whatnot, and the unbelievable happened. I learned that TriWest (Tric…
Read then vs. now → Originally written October 21, 2014How I Became Kidney Stone Free While Living With Cystinuria.
It's closing in on almost a decade since I was first diagnosed with cystinuria, and aside from this blog and popping into the occasional forum when I…
Read then vs. now → Originally written January 5, 2009Today is a bad day :_(
Those are real tears by the way. I have a lot to say this morning so bear with me. I am in pain...still, except I'm noticing it more today. It's the s…
Read then vs. now →Books by Lynne White
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Daily life, small wins, and the occasional rant.