update from clairesmom

Well I think the doctors attitude and mine have sunk in. Claire is taking her Thiloa and Uricit K again and has a blood work apt next week...She's not feeling great but when a person goes on and off meds that's to be expected. Her mood is good so that helps. Usually when she starts an increase (or in this case restarts) she usually produces more stones in the beginning. Not looking forward to that. I have been reading up on folks trying an new herbal remedy Cystine, and I will be interested and seeing what the test results are on that and see if down the road if that's the route she will choose to go. I'll keep you posted. Gayle