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From the archive · Originally written March 3, 2009

My cystine levels

Written as “Kidney Girl” on the original Cystinuria Blog · 1 min read

are (drum roll...)

1,428 mcmol/24hr

This is my pre-thiola level. I finally saw the number in my military medical records. Because of my sensitivity to the drugs, I'm only on 200 mg a day. I haven't done the calculations, but I'm sure that's no where near an effective amount. Someone said their daughter has 300-400 mcmol/24hr and they are on the same dosage of Thiola. Maybe it will help me a little.

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